September 25, 2023
We co-hosted with SUDEP Action a meeting at Parliament in October 2022 (Courtesy Anna Firth MP) making valuable networking connections and we’re also involved in the All Party Parliamentary Group on Epilepsy. SUDEP Action featured Maisie’s story in an awareness raising this year. Our very own support dog ‘Maisie’ is fully trained, lives with her new owner who has epilepsy but is able to lead a far more independent life with ‘Maisie’s’ help. We had full page stories twice in the...
September 25, 2023
Novo Hairdressing Academy ...... £ 270 Ashingdon Pre-School ...... £ 700 Dance School: Step into the Magic ...... £ 700 Jasmine’s Girl Guiding trip ...... £ 700 Family walk to Shoebury and back ...... £1600 ‘No present’ birthdays + regular donations ...... £ 670 Maisie’s friend Daniel ran the Great North Run ...... £1697 Donations in memory of others ...... £ 175 Total funds raised since inception total over £100,000
July 09, 2022
On 30th April 2022 we finally got to hold our Summer Ball to celebrate the life of our beautiful Maisie. This is Paulette's (Grandma) reflection on what was a imply incredible tribute to our girl.
March 25, 2022
If you would have asked me just over three years ago what the colour purple meant to me, I would have said “erm” and had a good think before answering.
March 26, 2021
We have reached another #purpleday so it's time for another update. Whilst fundraising has been very limited due to the COVID pandemic, this has not stopped us from continuing to raise awareness of the dangers of SUDEP.
March 26, 2020
Today is #purpleday , which is a day to encourage everyone to talk more about epilepsy. We thought this would be a timely opportunity for an update from the MTF.
September 28, 2019
Ollie, a friend of Maisie's brother Freddie, decided to take on the Hever Castle Triathlon raising over £500 for The Maisie Tothill Foundation.
September 21, 2019
On Saturday 21st September, the Kings Head in Southminster held their first Oktoberfest and decided to use the event to raise money for The Maisie Tothill Foundation. The sun shone all day and thanks to the hard work of staff and generosity of the customers a fantastic £500 was raised.
September 21, 2019
On 21st September, the Leigh Sailing Club hosted a 'Blues Brothers Night' supporting the Maisie Tothill Foundation. There was a good turn out and an impressive array of fancy dress costumes, topped by Louise Tothill in a full nun's habit. A fantastic night was had by all and thanks to the generosity of the men (and ladies) in suits, an amazing £850 was raised for the Foundation.
September 08, 2019
Steph decided to take on the Great North Run on behalf of Epilepsy Action in memory of Maisie. She completed the course raising a fantastic £740