We have reached another #purpleday so it's time for another update. Whilst fundraising has been very limited due to the COVID pandemic, this has not stopped us from continuing to raise awareness of the dangers of SUDEP.
On Saturday 21st September, the Kings Head in Southminster held their first Oktoberfest and decided to use the event to raise money for The Maisie Tothill Foundation. The sun shone all day and thanks to the hard work of staff and generosity of the customers a fantastic £500 was raised.
On 21st September, the Leigh Sailing Club hosted a 'Blues Brothers Night' supporting the Maisie Tothill Foundation. There was a good turn out and an impressive array of fancy dress costumes, topped by Louise Tothill in a full nun's habit. A fantastic night was had by all and thanks to the generosity of the men (and ladies) in suits, an amazing £850 was raised for the Foundation.
6 of Maisie's closest university friends decided to take on the mammoth challenge of conquering 3 of Yorkshire's highest peaks in less than 12 hours. We are sure that Maisie would have been incredibly proud of their achievement, but probably admired them from a safe distance!
On 30th August 2019, a group of 6 family and friends took on the O2 climb and raised over £1,200 for SUDEP Action and the Maisie Tothill Foundation. Read Maisie's Grandma Margaret's account of their adventure...…...
6 months on from Maisie's passing we saw her name, (and that of her Grandma), recorded in official Parliamentary history as Sir David Amess raised the issue of SUDEP during the Summer Adjournment Debate.