We co-hosted with SUDEP Action a meeting at Parliament in October 2022 (Courtesy Anna Firth MP) making valuable networking connections and we’re also involved in the All Party Parliamentary Group on Epilepsy. SUDEP Action featured Maisie’s story in an awareness raising this year. Our very own support dog ‘Maisie’ is fully trained, lives with her new owner who has epilepsy but is able to lead a far more independent life with ‘Maisie’s’ help. We had full page stories twice in the...
Novo Hairdressing Academy ...... £ 270 Ashingdon Pre-School ...... £ 700 Dance School: Step into the Magic ...... £ 700 Jasmine’s Girl Guiding trip ...... £ 700 Family walk to Shoebury and back ...... £1600 ‘No present’ birthdays + regular donations ...... £ 670 Maisie’s friend Daniel ran the Great North Run ...... £1697 Donations in memory of others ...... £ 175 Total funds raised since inception total over £100,000
We have reached another #purpleday so it's time for another update. Whilst fundraising has been very limited due to the COVID pandemic, this has not stopped us from continuing to raise awareness of the dangers of SUDEP.
On Saturday 21st September, the Kings Head in Southminster held their first Oktoberfest and decided to use the event to raise money for The Maisie Tothill Foundation. The sun shone all day and thanks to the hard work of staff and generosity of the customers a fantastic £500 was raised.
On 21st September, the Leigh Sailing Club hosted a 'Blues Brothers Night' supporting the Maisie Tothill Foundation. There was a good turn out and an impressive array of fancy dress costumes, topped by Louise Tothill in a full nun's habit. A fantastic night was had by all and thanks to the generosity of the men (and ladies) in suits, an amazing £850 was raised for the Foundation.